Short blog right now, sorry. I'm dealing with a few other loose ends right now that need to be tied up for the concert I'm helping organize week after next - for more details on that you can check out the Facebook event page at http://www.facebook.com/home.php#!/event.php?eid=112556425486712.
But today, I'm just asking for prayer for this guy. His name's Noah, and he's running across the southern United States for a rare and devastating neurological disease called Batten Disease. I follow a makeup artist on YouTube who introduced her subscribers to her friend Noah, and the family they know. This family has been effected by this disease, which only effects about 1000 kids in the US - they have TWO girls with it. I think we need to pray for Noah as he runs, but also the Allio family - especially Catie and Annie - as they cope with this disease and the horrifying symptoms of it. These girls have both lost their site, they experience seizures, hallucinations, cognitive loss, behavioral problems, dementia, and, eventually, death to the disease.
Please, just check out Noah's website - http://www.battenjourney.com - it'll give you all the information about Noah's run, where he is, how far he's gotten and how to donate to cause. Also, if you want to know more about the disease itself, I think the best place to start would be http://www.bdsra.com.
Maybe we don't know the family effected, but it's still not fair that any child should have to go through this. I'm sure prayers would be greatly appreciated.
Thanks for your time, Bloggers.
xme
Subscribe to:
Post Comments (Atom)

No comments:
Post a Comment